We are focused on:
Menieres 200 Project , aims to put 200 Meniere’s sufferers through an initial screening questionnaire which would then go on to inform a targeted testing programme looking for the presence of bacteria, viruses and toxins which studies show are all likely root causes of Meniere’s Disease.
Linking up specialist Diagnosis Centres for Meniere’s
Meniere’s is a multifactorial set of symptoms i.e. there can be many causes for the symptoms being displayed.
Our aim is to link up specialist Diagnosis Centres for Meniere’s to carry out expert investigation into each of the potential causes of the symptoms.
The following specialist areas need to be investigated during analysis and diagnosis of the symptoms. Each one if proven positive would usually require it’s own specific specialist treatment programme:
- Vestibular migraine
- Semicircular canal dehiscence syndrome (SCDS)
- Spinal misalignment
- Impact to head e.g. whiplash
- Food allergies and reactions
- Mould, Lyme and other toxins within your body
- High carbohydrate diet or uneven intake of carbohydrates
- Viral infection
- Bacteria infection
- Genetic immune system deficiency
A network of Menieres Specialists
We are working to gain support from appropriate medical professionals to establish a network of specialists to correctly diagnose and provide successful treatment protocols for each of the potential multifactoral issues.
For each of the many potential root causes Meniere’s Disease we want to ensure a consistent treatment protocol is identified and executed for Meniere’s sufferers.
Therefore we are looking to develop education programmes for each of the identified root causes.
Donating and Raising Funds for Research into Meniere’s Disease
In the UK for example there is no Government funding currently being set aside specifically for Meniere’s. We are trying to raise the profile to achieve significant funding into the research of Meniere’s Disease.
At Deaf to Menieres we ourselves have already donated to the Otology & Neurotology- Genomics of vestibular disorders led by Jose Antonio Lopez Escamez based in Spain, who are heavily engaged in research into Meniere’s Disease and have produced many research papers into Menieres.
We are committed to raising significant funding into research of Meniere’s Disease.