Hi, my name is John and I’ve been a Menieres sufferer since 2013 however after the first few years of trial and error I eventually managed to get my symptoms under control.
Currently I have not had a vertigo attack since 2016 and have stabilised my hearing loss such that I still have around 60% hearing in my affected ear and 100% hearing in my good ear.
I have also successfully relieved many of the accompanying symptoms people commonly get from Menieres i.e. dizziness, tinnitus, fatigue, head fog, cognitive issues, lack of sleep.
I have done this through a continual, slow, systematic process of identifying my root causes and addressing them. In doing that I have successfully maintained a steady systematic improvement over time.
With a desire to share what steps I have taken in my Menieres journey I’ve set Deaf to Menieres up as a global charity based in the UK to try and help other sufferers to similar success in the control of their symptoms.
Hopefully you will be able to benefit from what I have learned from my own journey and take a much faster track to resolution of your symptoms.
During my Menieres journey I have built up a fantastic network of Menieres friends many of whom have joined with me at Deaf to Menieres to contribute via patient feedback in building up information of the latest diagnostics, treatments and research across the world.
Much of this patient feedback led information is documented within the tabs on this website.
I sincerely hope you will also join with us and commence a journey to help bring your Menieres symptoms under control.
We are a patient led global charity registered in the UK dedicated to helping you find your ROOT CAUSE and find TREATMENTS THAT WORK.
The Root Cause guide has been built up from patient feedback supplied by our members.
I’ve tried to organise this website in a simple, easy to follow way based around the key things Menieres people struggle with.
The biggest fear and anxiety Menieres people tend to have is as a result of random vertigo attacks, I have a dedicated tab to help address that.
Many people struggle at the start to get a clear diagnosis of what is wrong with them, see our Diagnosis tab.
The latest views on treatment protocols for Menieres from our members based on patient feedback are included in our Treatment tab.
Diet is a key factor in the battle against Menieres, we have much information on the best diets to follow in our diet tab.
All tabs contain sub links to further pages of more detailed information.
Running a legal entity Charity is an expensive business in the UK to ensure we conform with the necessary regulatory and compliance legislation in place. To keep Deaf to Menieres continuing in it’s current form it would really help if you would join us.
Joining us is free but if you could afford a small donation to our running costs to keep this website going then that would be greatly appreciated, however small the donation every little helps. But free membership is also fine.
I wish you the best of health and if you are a Menieres sufferer reading this then I hope you find this website useful and starts you on the road to symptom management.
Director, Deaf to Menieres